Advocacy

What it Means to be an Advocate

Epilepsy Advocacy in Connecticut

Individuals with Epilepsy face unique obstacles to care including difficulty accessing proper medications, inflated cost of treatment, and limited state and federal resources.

Through the Epilepsy Foundation of Connecticut’s dedicated network of Advocates and events such as our annual Advocacy Day, we’re determined to fight for key policy issues in both the State and Federal capacities.

Epilepsy Legislative History

Become an Advocate

We Need Your Help!

The Epilepsy Foundation of Connecticut leads the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures and save lives.

We need your help! Join our growing force of Advocates and help us in our mission to create positive change in Connecticut and on Capitol Hill. Contact us to see how you can become an Advocate today

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helping make a difference

Epilepsy Advocacy Day 2023

Because of the amazing work our advocates did at Advocacy Day 2023, EFCT received a commitment from the Co-Chair of the Education Committee, Representative Jeff Currey, to add the Seizure Safe School legislation as an amendment to a larger bill in the 2023 session! We also received commitments from several members of the Education Committee to support this legislation. Following Advocacy Day, EFCT sent Representative Currey the language we wanted to see in the amendment. With Governor Ned Lamont’s signing of Public Act 23-160, it is now required by law that local and regional boards of education for public schools provide an in-service training program for certified school personnel on seizure recognition and first-aid response, as well as information about seizure action plans for students, and, for those authorized to administer medication, the administration of seizure rescue therapies, including the use of a vagus nerve stimulator magnet.

We would like to thank everyone who has helped us get to this point. Jessica Loffredo for advocating for Seizure Safe Schools and getting this process started. Representative Wood and her staff for introducing the bill and hosting us on Wednesday.

EFCT’s entire Board of Directors and specifically, Alex Robertson, Michelle Mechanic, and Denise Brower for helping us put Advocacy Day together. Our speakers, Sophia Seeger, Chris Murtha, Jessica Loffredo, and Sam Zakur. As well as all of our advocates for scheduling meetings with their legislators, attending the event, and advocating for the Connecticut Epilepsy Community!

Advocacy Day Gallery

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